About Sharon

Medical experts agree epilepsy affects between one and two percent of the world’s population with Temporal Lobe Epilepsy accounting for about half of that number. With nearly 7 billion people on earth, and about 310 million in the United States, the numbers of TLE sufferers become staggering: nearly 35 million worldwide and more than 1.5 million in the US, or roughly the population of Philadelphia.

The actual number may be much higher, however, because TLE shares many of the symptoms of migraines, anxiety disorders, post traumatic stress disorder, bi-polar disorder, and schizophrenia.

The Internet offers amazing options when gathering and researching information. Anyone can read and compare research on the myriad treatments, medications, and theories related to Temporal Lobe Epilepsy. Surviving Wonderland is my attempt to share my experiences and research with others who struggle with this condition. I am not a physician; my information is not professional medical advice. I am offering the living face and human experience behind the diagnosis.

Sharon Powell worked in health information management, hospital patient finance, and medical publications for nearly 20 years before Temporal Lobe Epilepsy forced her early retirement. At the time, she was a national expert in ICD-10 coding and gave presentations at conferences around the country.

Her e-book Surviving Wonderland, Living with Temporal Lobe Epilepsy is available from Amazon, Barnes & Noble, iTunes, and other e-book stores.

Her husband, John David Powell, is an award-winning journalist who has worked in journalism and public relations for nearly 40 years.

Sharon and John live in Texas.


4 thoughts on “About Sharon”

  1. Bronwyn McIntosh said:

    Dear Sharon,

    I am enjoying (although that it is not the correct word to use) reading your blog, which I stumbled onto this evening. I have had TLE since age 2, but it happened in fits and starts in my childhood and then resurfaced in late teens, only to resurface with a vengeance in my peri-menopausal years. So its been an interesting journey, many different medications. I’m fortunate that my seizures are mostly nocturnal but there seems to be a shift happening there too (I am now 47). I am looking at cutting back my work hours, and doing more yoga (I am a yoga teacher as well) plus hoping to spend time with my teens before they finally leave home. My full grand-mal (tonic-clonic) seizures have gone into status epilepticus twice in the past year and put me in hospital so it is time to get the message.

    Lots of different avenues to explore because as you’ve found, the medications do not always make you feel very well, and sometimes the drug cocktails are overwhelming.

    thank you for sharing your story. I deeply appreciate it.


    Bronwyn McIntosh
    Richmond, VA

    • Thank you for sharing some of your story, Bronwyn. I think anyone with the condition would benefit from your understanding and experience. Even though each person’s experience might be unique, there is so much to learn from sharing this part of our lives.

  2. Dear Sharon
    I have just read your blogs and will progress to your ebook.
    Thank you for this blog.
    I have had TLE all my life, but was only diagnosed with it in 2011. From then, it’s been a roller coaster of drugs and hospital. I have recently begun to experience excruciating persistent headaches and nausea. I am so terrified of going to the doctor, or telling my psychiatrist because I don’t want to go through new drugs again. I am still working and completing my PhD, and anti epileptic drugs knock me so badly that my work and thinking gets affected.
    I have spent the last three days crying. I love my work…I love the people I work with…but perhaps the hardest thing of all, is that I love thinking…And I feel like I’m going to lose all of it, like I’m busy losing all of it. It’s all I have. I too have researched tle, to understand better. I have been monitoring me closely for 6 months now. So, I know…The drugs did not prevent quite a severe episode.
    Anyway. I don’t really have a question…I just feel at the very end of myself and have been tipping over that Pandora’s Box for the hope, but there is none in there.

    • Thank you for telling me some of your story. This is a safe place where anyone who decides to do that is talking to others with the same issues. I want to encourage you in developing hope. There is hope, I believe and that hope has to start within you. You are what is important. I believe you when you say you are about to lose it all to the condition.

      I have had experiences in which I felt like that. If you can find it in yourself to be open to the changes, perhaps things will not be as hard or sad as you anticipate. I, personally don’t hold a lot of confidence in drugs taking away the condition, but I do believe your situation can be changed. You hold the key. You will eventually find what works.

      One thing that always helps me is yoga, I need to do another column on it because it is so beneficial. NYU uses it because it benefits many with epilepsy. Its not just the physical benefits either, but the emotional ones as well because in doing yoga one relaxes and concentrates on giving the body oxygen and peace.

      Please, please don’t give up hope. Many of us have passed through this time and in reading this will send our love and hope for you.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s